ICT Projects
FIRB 2008 Genetic testing and bio banks: bioethical issues
Programme: Investment fund for Primary Research (Firb): Future in Research
Start date: October 2008 . End date: October 2011
Description: Research on legal, ethical and social issues related to genetic counselling and testing. Design and implementation of 3 residential training courses (1 per year) on ethical, legal and psychosocial aspects of genetic tests and genetic counselling. The training events will focus attention especially on the following issues: the analysis of moral, juridical and psychosocial problems arising from the Human Genome Project; the ethical borders of the clinical usefulness of recent scientific discoveries; clinical implications of the various kinds of genetic testing available today (prenatal, presymptomatic and predictive testing) of reproductive techniques and of transgenic therapies of clonation.
EGF role: Partner
Website: http://futuroinricerca.miur.it/
MedGenMed - Genetic Medicine for the Mediterranean Countries
Programme: Programmes for the enhancement of the internationalisation of the University System - International Collaborations among Universities
Start date: July 2006 . End date: June 2008
Description: This project was financed by the Italian Ministry of University and Research (MIUR) and involved several Universities from 7 different Mediterranean countries, already belonging to the EUMEDIS Network created within the previous project EuMed Cancer - GeMed-Network. MedGenMed was aimed to enhance the accessibility of the courses offered by the European Society of Human Genetics; in particular of the so-called `hybrid` mode which consists in the transmission live of residential courses to Remote Training Centres classes at the partner Universitites.Thanks to this project, 110 international students were able to attend the residential courses at the ESGM main venue in Italy and 330 students attending the courses from their Universities in web casting and teleconference developed by the ESGM.
EGF role: Coordinator
Website:
Ithanet - eInfrastructure for Thalassaemia Research Network
Programme: 6th Framework Programme for Research and Technological Development of the European Union.
Start date: April 2006 . End date: December 2008
Description: The European project ITHANET, financed within the thematic priority Information Society Technologies, aims to strengthen the Euro Mediterranean community of researchers in molecular and clinical research into thalassaemia and related haemoglobinopathies and to enhance its scientific potential using the existing and emerging infrastructures and tools of European research networks.
EGF role: Coordinator of the project`s training activities.
Website: project.ithanet.eu/
Human Potential Programme - High-level Scientific Conferences
Programme: 5th Framework Programme for Research and Technological Development of the European Union
Start date: November 2001 . End date: March 2003
Description: The Human Potential Programme was aimed to support training and mobility of researchers from virtually all scientific fields throughout Europe and increase EU expertise in the socio-economic sciences to allow us to understand how to harness Europe`s rapidly changing society. Within this Programme the European Genetics Foundation has received funding for several training events that took place at the University Residential Centre of Bertinoro (Italy) between 2001 and 2003. The courses funded included: Medical Genetics; Ret As a Dependence Receptor Involved In Apoptosis, Neuronogenesis and Tumorigenesis; From Developmental Genes to Dismorphology; Bioinformatics; Molecular Cytogenetics and Comparative Genomics.
EGF role: Coordinator
Website: